A plain-language guide

hemiplegic migraine

What's known, what's still uncertain, and what's actively debated, written plainly, and built only from published medical research.

Growing map · 37 sourced statements Every statement names its source Updated 2026-08-04
Please read this first. This guide is a companion to your medical team, not a replacement, and it is not medical advice. Everything here is tied to published research. If something you expected is not here, it almost always means we have not mapped a source for it yet, not that it is unknown to medicine. hemiplegic migraine is an early, growing map, so it will look incomplete on purpose: we would rather show less and have every line be something you can check than fill the page with claims we cannot stand behind. For anything about your own situation, your clinicians hold the full picture. How this guide is built and why.

What's hemiplegic migraine?

Hemiplegic migraine is a rare and severe form of migraine with aura whose defining feature is temporary weakness on one side of the body during an attack. The familial form is inherited in an autosomal dominant pattern.

Also indexed asORPHA:569, MONDO:0018925
Features mapped12
Treatments mapped6
Published sources9
Last reviewed2026-08-04

Signs and symptoms

Diplopia

Double vision (diplopia) can occur during attacks in some people, among the broader range of aura symptoms.

Limited evidenceSource: PMID:42067833
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesORPHA:569
Notesplain_language confirmed from PMID:42067833 via curation 2026-06-12. | regrounded primary ORPHA:569 -> PMID:42067833 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Aphasia

During a hemiplegic migraine attack, speech can be affected as part of the aura, alongside the one-sided weakness. These speech symptoms typically come with the motor aura.

Limited evidenceSource: PMID:42178246
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:41146775, ORPHA:569
Notesplain_language confirmed from PMID:41146775 via curation 2026-06-12. plain_language confirmed from PMID:42178246 via curation 2026-06-25 [claude-draft]. | regrounded primary ORPHA:569 -> PMID:42178246 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

CSF pleocytosis

During severe hemiplegic migraine attacks the spinal fluid can show a rise in white cells (pleocytosis) even though there is no infection. This can make an attack look like meningitis or encephalitis and lead to unnecessary tests if the diagnosis isn't known.

Limited evidenceSource: PMID:32430436
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:41589756, ORPHA:569
Notesplain_language confirmed from PMID:41589756 via curation 2026-06-18 [carrie (curation)]. | regrounded primary ORPHA:569 -> PMID:32430436 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Migraine with aura

Hemiplegic migraine is a subtype of migraine with aura. Visual, sensory, and speech symptoms typically come with the one-sided motor weakness, and a throbbing headache follows.

Limited evidenceSource: PMID:37247170
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:41885191, PMID:42178246, ORPHA:569
Notesplain_language confirmed from PMID:41885191 via curation 2026-06-12. plain_language confirmed from PMID:42178246 via curation 2026-06-25 [claude-draft]. | regrounded primary ORPHA:569 -> PMID:37247170 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Decreased vigilance

Severe hemiplegic migraine attacks can reduce alertness and, rarely, cause loss of consciousness, sometimes with seizures and fever. These severe attacks can look like a stroke or brain infection and may need hospital care.

Limited evidenceSource: PMID:32430436
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:41146775, ORPHA:569
Notesplain_language confirmed from PMID:41146775 via curation 2026-06-18 [carrie (curation)]. | regrounded primary ORPHA:569 -> PMID:32430436 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Paresthesia

The aura of hemiplegic migraine usually marches through several symptoms. Sensory changes such as tingling or numbness (paresthesia) commonly spread up a limb or across the face, typically along with visual and speech symptoms before or with the weakness.

Limited evidenceSource: PMID:37247170
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:42178246, ORPHA:569
Notesplain_language confirmed from PMID:42178246 via curation 2026-06-18 [carrie (curation)]. | regrounded primary ORPHA:569 -> PMID:37247170 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Hemiparesis

In hemiplegic migraine, an attack involves temporary weakness on one side of the body that comes on as part of the aura. The weakness is reversible, though in some attacks it can last a long time before recovering.

Limited evidenceSource: PMID:42178246
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:41146775, ORPHA:569
Notesplain_language confirmed from PMID:41146775 via curation 2026-06-12. plain_language confirmed from PMID:42178246 via curation 2026-06-25 [claude-draft]. | regrounded primary ORPHA:569 -> PMID:42178246 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Progressive gait ataxia

Some people with familial hemiplegic migraine also develop ataxia, meaning problems with balance and coordinated movement. It is described alongside the recurrent migraine and one-sided weakness that characterize the condition.

Limited evidenceSource: PMID:32430436
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:41370402, PMID:21183743, ORPHA:569
Notesplain_language confirmed from PMID:41370402 via curation 2026-06-18 [carrie (curation)]. plain_language confirmed from PMID:21183743 via curation 2026-06-25 [claude-draft]. | regrounded primary ORPHA:569 -> PMID:32430436 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Hemiplegia

Hemiplegic migraine is named for the one-sided weakness or loss of movement that occurs as an aura symptom during an attack. This weakness is reversible.

Limited evidenceSource: PMID:42178246
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:42193281, ORPHA:569
Notesplain_language confirmed from PMID:42193281 via curation 2026-06-12. plain_language confirmed from PMID:42178246 via curation 2026-06-25 [claude-draft]. | regrounded primary ORPHA:569 -> PMID:42178246 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Confusion

Severe hemiplegic migraine attacks, particularly the FHM2 form linked to ATP1A2, can cause a confused, encephalopathic state with reduced alertness, sometimes alongside seizures, that can last well beyond a typical migraine.

Limited evidenceSource: PMID:32430436
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesPMID:41146775, ORPHA:569
Notesplain_language confirmed from PMID:41146775 via curation 2026-06-18 [carrie (curation)]. | regrounded primary ORPHA:569 -> PMID:32430436 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Vertigo

Some people with hemiplegic migraine have spinning dizziness (vertigo) during attacks, reflecting involvement of the brainstem and the ion-channel changes that drive the disorder. It can occur with double vision and ringing in the ears.

Limited evidenceSource: PMID:42067833
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesORPHA:569
Notesplain_language confirmed from PMID:42067833 via curation 2026-06-18 [carrie (curation)]. | regrounded primary ORPHA:569 -> PMID:42067833 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

Tinnitus

Ringing or buzzing in the ears (tinnitus) can occur during hemiplegic migraine attacks as part of the brainstem aura symptoms, often alongside vertigo and double vision.

Limited evidenceSource: PMID:42067833
Evidence ratingweak
Study designontology_import
Confidence (0-1)0.7
Replicationunreplicated
Supporting sourcesORPHA:569
Notesplain_language confirmed from PMID:42067833 via curation 2026-06-18 [carrie (curation)]. | regrounded primary ORPHA:569 -> PMID:42067833 on 2026-06-26 [Carrie Schluter, BCPA]
Last reviewed2026-06-26

How it is diagnosed

Familial or sporadic hemiplegic migraine

Diagnosed using: ICHD diagnostic criteria.

Limited evidenceSource: PMID:40301022
The source text this rests on
“According to the diagnostic criteria of International Classification of Headache Disorders (ICHD-3β), 142 patients were diagnosed with…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:40301022 via curation 2026-06-25
Last reviewed2026-06-25

Familial or sporadic hemiplegic migraine

Diagnosed using: Genetic testing.

Limited evidenceSource: PMID:41146775
The source text this rests on
“Familial HM (FHM) is an autosomal dominant condition linked to mutations in CACNA1A, ATP1A2, and SCN1A…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:41146775 via curation 2026-06-25
Last reviewed2026-06-25

Familial or sporadic hemiplegic migraine

Diagnosed using: Whole-exome sequencing.

Limited evidenceSource: PMID:41146775
The source text this rests on
“Genetic testing with whole-exome sequencing (WES) confirmed an ATP1A2 mutation consistent with…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:41146775 via curation 2026-06-26
Last reviewed2026-06-26

Treatment and management

What the research describes, not a recommendation. Treatment decisions belong with your clinician.

This covers treatments that appear in the published research mapped here. Investigational and experimental therapies are not included, so their absence is a boundary of this map, not a sign they do not exist.

Verapamil

Verapamil, a calcium-channel blocker, is recommended as a preventive treatment for familial hemiplegic migraine and may also help in the sporadic form.

Used to help with: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:17032572
The source text this rests on
“Oral verapamil is recommended for patients with familial hemiplegic migraine and may be effective in patients with sporadic hemiplegic migraine.”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:17032572 via curation 2026-06-12
Last reviewed2026-06-12

Magnesium sulfate

Intravenous magnesium sulfate can be used to relieve the symptoms of a hemiplegic migraine attack in both the familial and sporadic forms.

Used to help with: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:17032572
The source text this rests on
“…magnesium sulfate to relieve the symptoms in familial hemiplegic…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:17032572 via curation 2026-06-26
Last reviewed2026-06-26

Fremanezumab

Fremanezumab, an antibody that blocks the CGRP pathway, has been used as a preventive treatment and was followed by a reduced frequency of prolonged sporadic hemiplegic migraine attacks in a reported case.

Used to help with: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:41589756
The source text this rests on
“Reduced Frequency of Prolonged Sporadic Hemiplegic Migraine Attacks Following…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:41589756 via curation 2026-06-26
Last reviewed2026-06-26

CGRP monoclonal antibodies

Recent evidence suggests that calcitonin gene-related peptide (CGRP)-targeting monoclonal antibodies may help prevent attacks in hemiplegic migraine, where preventive options have been limited.

Used to help with: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:42178246
The source text this rests on
“…recent evidence supports the potential efficacy of calcitonin gene-related peptide-targeting monoclonal…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:42178246 via curation 2026-06-26
Last reviewed2026-06-26

Lamotrigine

Lamotrigine has been used as an initial treatment in a person with sporadic hemiplegic migraine before a preventive antibody was started.

Used to help with: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:41589756
The source text this rests on
“…supported the diagnosis of sporadic hemiplegic migraine (SHM). Genetic testing revealed no mutations associated with familial HM. Initial treatment with…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:41589756 via curation 2026-06-26
Last reviewed2026-06-26

Nimodipine

Nimodipine, a calcium-channel blocker, has been reported in hemiplegic migraine, with improvement in consciousness and language described in one case, though its use remains controversial.

Used to help with: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:41146775
The source text this rests on
“The patient improved in consciousness and language after nimodipine therapy but had persistent hemiplegia at…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:41146775 via curation 2026-06-26
Last reviewed2026-06-26

What changes how it shows up

The diagnosis is not the whole story. The factors and open questions below are described in the research mapped here as shaping whether, or how strongly, the condition shows up, or as points the field has not yet settled. They are not, on their own, its cause or its cure.

Autosomal dominant inheritance

Familial hemiplegic migraine is inherited in an autosomal dominant pattern, meaning a change in a single copy of the gene is enough to cause it and it can be passed down through a family.

Described as modulating: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:42178246
The source text this rests on
“Familial hemiplegic migraine is caused by autosomal dominant mutations in the CACNA1A, ATP1A2, SCN1A, and PRRT2…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:42178246 via curation 2026-06-25
Last reviewed2026-06-25

CACNA1A / ATP1A2 / SCN1A / PRRT2 gene subtypes

The familial form of hemiplegic migraine can be caused by changes in the CACNA1A, ATP1A2, SCN1A, or PRRT2 genes. Which gene is involved defines the genetic subtype.

Described as modulating: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:42178246
The source text this rests on
“Familial hemiplegic migraine is caused by autosomal dominant mutations in the CACNA1A, ATP1A2, SCN1A, and PRRT2…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:42178246 via curation 2026-06-25
Last reviewed2026-06-25

ATP1A2 (FHM2)

Hemiplegic migraine linked to the ATP1A2 gene is known as familial hemiplegic migraine type 2 (FHM2). This subtype may present with seizures, encephalopathy, or prolonged neurological deficits.

Described as modulating: Familial or sporadic hemiplegic migraine.

Limited evidenceSource: PMID:41146775
The source text this rests on
“FHM type 2 (FHM2), associated with ATP1A2 mutations, disrupts astrocytic Na⁺/K⁺-ATPase function and may present with seizures, encephalopathy, or prolonged neurological…”
An excerpt quoted verbatim from the source named above, shown as recorded. The full sentence is in the linked source.
Evidence ratingweak
Confidence (0-1)0.7
Replicationunreplicated
Notesconfirmed from PMID:41146775 via curation 2026-06-25
Last reviewed2026-06-25

How to read the evidence labels

Widely acceptedSpecialists broadly agree on this.
Strong evidenceBacked by solid, repeated research.
Moderate evidenceReasonable evidence, still being confirmed.
Limited evidenceSome evidence, but not yet convincing.
Early evidenceAn early finding that needs more study.
Experts disagreeResearchers actively disagree about this.
No longer supportedLater, stronger evidence or guidance overturned this.

Where this comes from

This guide is built from 9 published source(s). Every claim above links back to one of them. Click any source ID to read the original on PubMed.

ORPHA:569 · Orphanet/HPO annotations for Familial or sporadic hemiplegic migraine
PMID:17032572 · Interactions between migraine and stroke.
PMID:32430436 · Diagnostic and therapeutic aspects of hemiplegic migraine.
PMID:37247170 · Hemiplegic Migraine.
PMID:40301022 · Clinical characteristics of hemiplegic migraine: a clinical study of 163 cases in a tertiary care headache centre.
PMID:41146775 · From Stroke Suspicion to Genetic Confirmation: Familial Hemiplegic Migraine Type 2 as a Rare Stroke Mimic With Persisten
PMID:41589756 · Reduced Frequency of Prolonged Sporadic Hemiplegic Migraine Attacks Following Fremanezumab Treatment-A Case Report.
PMID:42067833 · CACNA1A c.5610del in a three-generation family: epilepsy with ataxia/migraine.
PMID:42178246 · [Hemiplegic migraine: from historical perspectives to current management].

Take it further

Printed, source-linked documents built from this condition's graph — ready to bring to an appointment or attach to a coverage request. Every claim carries its published source, the same as this guide.